The Partners Against Mortality in Epilepsy (PAME) Conference is designed to increase the sense of urgency and accelerate action around an overlooked and underfunded public health issue – mortality in epilepsy. This conference brings together clinicians and scientists at the forefront of treatment and research with those most deeply aware of and impacted by these issues – families and individuals directly touched by epilepsy and its consequences. This extraordinary convergence of commitment, energy, knowledge and action is what makes PAME such a special experience.
Photos from PAME 2016 are available here.
If you have questions regarding the 2018 PAME Conference, please contact Joanna Crooks at firstname.lastname@example.org.
This multi-day learning event, the only meeting focused exclusively on increasing understanding of mortality in epilepsy, including Sudden Unexpected Death In Epilepsy (SUDEP). This program brings together clinical and basic science professionals, patients and their families to advance research, facilitate collaborations, engage patients to participate in critical research, and increase urgency around an overlooked and underfunded public health issue, while building understanding and support for each other.
- LEARN - Identify trends in incidence and mortality, gaps in the knowledge base and progress made in the latest research
- SHARE - Come together with patients, families, clinicians, researchers, advocates and policymakers for greater insights and collaboration
- ACT - Know risk factors and prevention strategies, identify future research opportunities and strengthen methods for building public awareness.
This conference is conceived and planned by a large and diverse group of professionals, advocates and family members. Major contributing organizations include the American Epilepsy Society (AES), Citizens United for Research in Epilepsy (CURE), Epilepsy Foundation (EF), and the Danny Did Foundation.
Next year's event will be held June 14-16, 2018 at The Westin Alexandria in Alexandria, Virginia.
ATTENDEE INFO (2016)
DOWNLOAD ABSTRACTS [PDF] (2016)
DOWNLOAD HANDOUTS (2016)
DOWNLOAD BROCHURE [PDF] (2016)
DOWNLOAD PROGRAM BOOK [PDF] (2016)