This four-day learning event, the only meeting focused exclusively on increasing understanding of mortality in epilepsy, including Sudden Unexpected Death In Epilepsy (SUDEP). This program brings together clinical and basic science professionals, patients and their families to advance research, facilitate collaborations, engage patients to participate in critical research, and increase urgency around an overlooked and underfunded public health issue, while building understanding and support for each other.
- LEARN - Identify trends in incidence and mortality, gaps in the knowledge base and progress made in the latest research
- SHARE - Come together with patients, families, clinicians, researchers, advocates and policymakers for greater insights and collaboration
- ACT - Know risk factors and prevention strategies, identify future research opportunities and strengthen methods for building public awareness.
This conference has been conceived and planned by a large and diverse group of professionals, advocates and family members. Major contributing organizations include the American Epilepsy Society (AES), Citizens United for Research in Epilepsy (CURE), Epilepsy Foundation (EF), the Danny Did Foundation, and the Patrick Ring Foundation. Please check here for the most current list of all partners or if your organization is interested in becoming a partner.
This year's event will be held June 23-26, 2016 at the The Westin Alexandria in Alexandria, Virginia.