Thank you for your involvement in the third biennial Partners Against Mortality in Epilepsy Conference! Our meeting goal was to increase the sense of urgency and accelerate action around an overlooked and underfunded public health issue – mortality in epilepsy. This conference brought together clinicians and scientists at the forefront of treatment and research with those most deeply aware of and impacted by these issues – families and individuals directly touched by epilepsy and its consequences. This extraordinary convergence of commitment, energy, knowledge and action is what makes PAME such a special experience.
As we continually strive to improve the conference, we would greatly appreciate your feedback. Please take just a few minutes to complete our post-conference survey.
Photos from PAME 2016 are available here.
This multi-day learning event, the only meeting focused exclusively on increasing understanding of mortality in epilepsy, including Sudden Unexpected Death In Epilepsy (SUDEP). This program brings together clinical and basic science professionals, patients and their families to advance research, facilitate collaborations, engage patients to participate in critical research, and increase urgency around an overlooked and underfunded public health issue, while building understanding and support for each other.
- LEARN - Identify trends in incidence and mortality, gaps in the knowledge base and progress made in the latest research
- SHARE - Come together with patients, families, clinicians, researchers, advocates and policymakers for greater insights and collaboration
- ACT - Know risk factors and prevention strategies, identify future research opportunities and strengthen methods for building public awareness.
This conference has been conceived and planned by a large and diverse group of professionals, advocates and family members. Major contributing organizations include the American Epilepsy Society (AES), Citizens United for Research in Epilepsy (CURE), Epilepsy Foundation (EF), the Danny Did Foundation, and the Patrick Ring Foundation. Please check here for the most current list of all partners or if your organization is interested in becoming a partner.
This year's event will be held June 23-26, 2016 at the The Westin Alexandria in Alexandria, Virginia.