PAME 2016

June 23-26, 2016
Washington, D.C.


Download the PAME program book. [PDF]


This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the American Epilepsy Society and the Epilepsy Foundation. The American Epilepsy Society is accredited by the ACCME to provide continuing medical education for physicians.


Credit Designation

The American EpilepsySociety designates this live course for a maximum of 16 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.


Thursday, June 23, 2016

12:00-4:00 p.m. Congressional visits with families and professionals (tentative)
4:30-6:00 p.m. Family welcome and introductions
4:30-6:00 p.m. Epilepsy mortality basic primer for families
7:00-8:30 p.m. Welcome reception

Friday, June 24, 2016

8:00-8:30 a.m. Welcome, meeting overview, presentation of personal stories
8:30-10:15 a.m.

Plenary 1: Mortality in people with epilepsy
Epidemiology & Surveillance

10:15-10:30 a.m. Break
10:30 a.m. - 12:00 p.m. Plenary 2: Pediatric considerations 
12:00-1:30 p.m. Lunch
1:30-3:30 p.m. Plenary 3: What do we know about the factors that predispose certain people to die from a seizure?
3:30-3:45 p.m. Break
3:45-5:00 p.m.

Breakout 1: Gene analysis and discovery in SUDEP
Breakout 2: Improving mortality surveillance and case ascertainment
Breakout 3: Non-SUDEP Causes of mortality

5:30-7:30 p.m. Posters and reception

Saturday, June 25, 2016

7:00-8:00 a.m. Family breakfast
8:00-8:30 a.m. Morning welcome, with family speaker
8:30-10:00 a.m. Plenary 4: What are the events that occur during and after a seizure that cause a death in SUDEP?  
10:00-10:15 a.m. Break
10:15 a.m. - 12:00 p.m.

Breakout 4: Mechanisms of SUDEP
Breakout 5: Lessons learned in grief and how to better support families

12:00-1:30 p.m. Lunch
1:30-3:00 p.m. Plenary 5: Prevention – what are the options for prevention now and in the future?
3:00-3:15 p.m. Break
3:15-5:00 p.m. Breakout 6: Future directions for research to impact prevention
Breakout 7: How do we improve SUDEP risk disclosure?

Sunday, June 26, 2016

8:00-9:00 a.m. Plenary 6: Advocacy perspectives: how can we speed up awareness and prevention?
9:00-10:00 Plenary 7: Major resources and programs for research in epilepsy mortality and what they are doing
10:00-10:15 a.m. Break
10:15-11:15 a.m. Bringing it all together panel
11:15-11:30 a.m. Thanks and farewell

The 2016 PAME conference is supported in part by the National Institute of Neurological Disorders and Stroke within the National Institutes of Health under Award Number R13NS098743. The content presented at the conference is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.